Kristina Coburn

AusDoCC  President

Social Media and Meet Ups coordinator

Tina  returns as president of AusDoCC for 2021/22.

Kristina (Tina) is the mother of three amazing young men, Connor, Hamish and Kyle. Connor (born in 1998) and Kyle (born 2006) both have agenesis of the corpus callosum and coincidentally they also share a birthday. Tina lives in Perth, Western Australia. She has a background in childcare and is a passionate advocate for her sons. They all share their mother’s crazy sense of humour.

After a lonely journey through the ACC world with Connor, when Kyle was diagnosed Tina felt the need to connect with as many parents as possible. She was unable to find a single support group for ACC in Australia. Facebook was a popular social network site so she decided to start an Australian Facebook group. This was the seed that grew into AusDoCC. Tina’s goal has always been to connect with as many Australian families, with a disorder of the corpus callosum, as possible.

Preferred pronouns she/her

Maree Maxfield

AusDoCC Secretary

Major events, professional liaison & website coordinator

Maja Palacios

AusDoCC Treasurer

WA and creative design coordinator

Maja lives in Perth Western Australia her husband, Andrew and two daughters Eva, aged 13 and Andie, aged 11.
Andie was born with complete agenesis of the corpus callosum which, in her case, is considered a part of an undiagnosed syndrome. Until discovering the AusDoCC facebook group in 2013 the family had found it to be a very isolated and unknown journey.
Maja has a background in applied science. She has worked as a lab technician and then a quality control coordinator in a laboratory for a major fertilizer company for over ten years. While pregnant with Eva, Andrew and Maja endeavored to start their own Mobile Heavy Haulage repairs company. They have been successfully running this company for 10 years.
Maja is a motivated person who has an artistic flair, Her family has a background in photography and graphic design.
Having a undiagnosed rare child with complex needs, Maja wants to contribute to raising awareness about AusDoCC and help bridge the obvious gaps in the system.

 Margaret Krutli

SA coordinator

Margaret has Complete ACC, which was discovered when she was 40. She has been married to Chris for over 40 years & has 2 adult children. They live in the southern suburbs of Adelaide. Margaret joined the AusDoCC in 2018 & the Perth Conference was her first. She joined the Committee to help adults with ACC & parents, who have children with ACC, in South Australia, connect with each other.

Margaret worked in Small Business, involving  Customer Service & Clerical work. She has been a full-time mum in her children’s growing years & volunteered in various organisations for 30 years.

Meet Ruby, her fur baby.

Abbie Kinniburgh

Vic adults  and adults content newsletter coordinator

Abbie was born in May 1990 and has partial agenesis of the corpus callosum (pACC).

Abbie lives in Melbourne with her mother and her mini fox terrier dogs- 15 year old Scout and 1 year old Maggie. Her puppies are her best friends and often a big comfort for her.

Abbie also has an old brother Jacob who lives in Melbourne. He is a musician and is always there if/when Abbie needs him.

When Abbie was 2 years old after an MRI diagnosed her pACC,  Abbie's parents were told she would never learn to read or write. Since then she has completed primary school, secondary school (including VCE), studied TAFE and university level courses.

After more then 20 years of constant schooling and higher education (with little supports in place), Abbie decided she needed a break. She is currently focusing on her own needs, helping to develop identity and connection for the AusDoCC community, building her own sense of identity and working on how to move forward.

Everything for Abbie is challenging on some level. She works at a slow, steady pace; one week, one day or even one hour at a time. The support she gets from her mum and now all the people who work with her  through NDIS make it easier to do what she needs to, in the ways she needs to. She has many challenges due to her corpus callosum disorder (CCD) and other health conditions.

Through being part of and working with AusDoCC, Abbie wants to spread the word about this condition in Australia. She wants to find and support others who are living with a CCD, creating a sense of identity identity and connection for others.

Preferred pronouns: she/her

Michael Shanahan

AusDoCC Vice President

Qld adults and research page coordinator

Congratulations and welcome to Michael as the first adult with a DCC to join the AusDoCC executive team.

Michael has been a member of the AusDoCC Committee since 2014, and Vice-President since 2020 and has a DCC. Michael is AusDoCC’s Research Officer and is passionate about the role scientific research has in improving the lives of people with a DCC and is conducting research into DCCs as part of his post-graduate studies. Michael has eight years professional experience as a Registered Nurse and is involved in many mental health communities online.

Tanya Smith

NSW and teens coordinator

Tanya is the mother of two children, Kody and Alex. Kody (born 2005) has partial agenesis of the corpus callosum. Tanya and her family of four have made the huge move back from Western Australia to northern NSW, where she will enjoy rural life near family and friends. Tanya is a champion advocate and negotiator for her two children to gain resources for her family. In this term Tanya hopes to raise the profile of teens with ACC and their siblings.

Tanya has an extensive background in a number of roles including 20 years in building and surveying on the Gold Coast and volunteering for not for profit charities supporting families with special needs. Tanya would like to see AusDoCC continue to grow and become an organisation recognised for raising awareness and having a friendly support network for our members. She would like to see professionals recommending the organisation to other persons with a DCC for support and to build on resource information for teachers and teachers aides that will help them to teach our children.

Hilary Bustillo

Qld coordinator

Hilary is a mum of 3, and her youngest child Karina is 5 years old with Complete Agenesis of the Corpus Callosum. She has been a member of AUSDOCC since Karina was born, is motivated to contribute to building community connections and practical supports for people with Disorders of the Corpus Callosum. Prior to joining the committee this year, Hilary has been involved with fundraising for AusDoCC conferences by completing a stair running challenge, and has been a regular participant in local area AusDoCC Meet Ups.

Hilary is a nurse in Queensland Health and specialises in Community and Aged care nursing. She currently works as a Clinical Nurse in a major Brisbane Hospital and is involved in geriatric assessment and case management for community supports and services.  During the turbulent year of 2020, she has branched out of her comfort zone, and assisted in a local fever clinic with COVID testing.

Hilary enjoys weightlifting and plans on entering a bench press powerlifting competition in the new year, COVID permitting. .

Georgie Lamb

NSW adults and Adults' birthday greetings coordinator

Georgie Lamb lives in Bathurst New South Wales and was diagnosed with complete ACC at the age of 17YO, she has learning difficulties, balance and coordination issues, spacial awareness, social anxiety and depression.

Georgie has her cert 3 in Education Support (Teachers Aide) and gained her Black Belt in Karate in 2012.

Georgie has ogoing support with disability and mental health services in town funded by the NDIS.

Jade Wright

Committee member

Alex Andrews

Committee member