We ROAR for all people with a disorder of the corpus callosum –
Recognition, Opportunities, Access and Resources
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Watch and Listen
Professor Linda Richards explains disorders of the corpus callosum
https://www.youtube.com/watch?v=H5_cTB0hHOg
The Mysterious Corpus Callosum – All in the Mind, Radio National
https://www.abc.net.au/radionational/programs/allinthemind/the-mysterious-corpus-callosum/7416876
Dr Lynn Paul on the psychology of corpus callosum disorders.
https://www.ausdocc.org.au/connections-2015/connections-2015-dr-lynn-paul/
Events
Education
Explaining ACC to your child’s teacher. click here for a helpful resource
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Research
Receiving an ACC Diagnosis in Utero
The research study aims to explore the lived experiences of mothers who have been told that their unborn baby has a diagnosis of agenesis of the corpus callosum (ACC). It is hoped that the results will help the people who have not had this experience, gain an understanding of the things the mothers move through. These people outside the maternal experience may be clinicians, researchers, support organisations, families or friends. This understanding may then lead to greater empathy, awareness and opportunities to support mothers through this time.
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Longitudinal Study of Behavior and Development in Infants and Toddlers with ACC
This is the first study examining behavioral development in children with Agenesis / Dysgenesis of the Corpus Callosum (ACC) from birth into early childhood.
Our aim is to characterize/describe the behavior development of children with agenesis/dysgenesis of the corpus callosum. Ultimately, this understanding can be used to create more effective intervention techniques and supports for children and adults with ACC.
California Institute of Technology (Caltech). To find out more about the study visit: www.accinfantstudy.com
Governance
Annual AusDoCC Face2Face Planning Meeting and Avo Tea
Major AusDoCC Sponsors
AusDoCC is a 100% Volunteer operated Not For Profit (NFP) organisation. We rely on donations, fundraising and sporadic grants to operate. All Committee members donate their time, expertise and energy. Please donate to help us help all families and individuals connected by a disorder of the corpus callosum. We appreciate the generosity of all donors and particularly our major sponsors.
Adults with DCC
Click here to meet Georgie, Bill & Connor
15 Adults with a DCC, 3 carers and 2 facilitators spent a valuable 4 days in Brisbane touring QBI and working together with leading corpus callosum researchers and clinicians.
Sponsored by Australian Government Conference Initiatives Grant and AusDoCC Inc.
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Awareness
On July 2, we wear our Hats, Tatts and Ts for International Corpus Callosum Awareness Day.
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News
SPRING edition due November
Click here to read past AusDoCC newsletters
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Brain Sells
Edna, our mascot, is a fat tailed dunnart and has no corpus callosum. Buy an Edna here
Visit the AusDoCC shop https://www.ausdocc.org.au/shop to buy caps, tatts and much much more
NEW in the shop – T shirts. 3 styles. 2 colours. 11 sizes.
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AusDoCC Vision
To ROAR for
Recognition, Opportunities, Access and Resources
for everyone with a disorder of the corpus callosum.
About AusDoCC and DCC
What is a disorder of the corpus callosum?
The corpus callosum is the major connection between the two hemispheres of the brain. A disorder of the corpus callosum (DCC) occurs when the corpus callosum, the major connecting structure between the two hemispheres of the brain, is partially or fully absent at birth. Disorders are often collectively referred to as ‘agenesis of the corpus callosum’ or ‘ACC.’
Our Stories
When a child is diagnosed with a disorder of the corpus callosum (DCC) parents are often told to ‘wait and see’ as the impacts are many and varied and range from mild to severe. When an adult is diagnosed, it may explain a lifetime of medical puzzles. All our stories are different. Through sharing our stories, we can see these differences and also the similarities.
AusDoCC history
AusDoCC Inc. was created by a group of mothers of children with a disorder of the corpus callosum (DCC) in 2012. It has since expanded to include adults with a DCC, partners and grandparents. Through lived experience we aim to uphold our vision to ROAR for AusDoCC for Recognition, Opportunities, Access and Resources.
