Welcome to Australian Disorders of the Corpus Callosum (AusDoCC).

We ROAR for all people with a disorder of the corpus callosum –

Recognition, Opportunities, Access and Resources

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Watch and Listen

Professor Linda Richards explains disorders of the corpus callosum

https://www.youtube.com/watch?v=H5_cTB0hHOg

The Mysterious Corpus Callosum – All in the Mind, Radio National

https://www.abc.net.au/radionational/programs/allinthemind/the-mysterious-corpus-callosum/7416876

Dr Lynn Paul on the psychology of corpus callosum disorders.

https://www.ausdocc.org.au/connections-2015/connections-2015-dr-lynn-paul/

 

Events

Education

Explaining ACC to your child’s teacher. click here for a helpful resource 

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Research

Receiving an ACC Diagnosis in Utero

The research study aims to explore the lived experiences of mothers who have been told that their unborn baby has a diagnosis of agenesis of the corpus callosum (ACC). It is hoped that the results will help the people who have not had this experience, gain an understanding of the things the mothers move through. These people outside the maternal experience may be clinicians, researchers, support organisations, families or friends. This understanding may then lead to greater empathy, awareness and opportunities to support mothers through this time.

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Longitudinal Study of Behavior and Development in Infants and Toddlers with ACC

 

 

 

 

This is the first study examining behavioral development in children with Agenesis / Dysgenesis of the Corpus Callosum (ACC) from birth into early childhood.

Our aim is to characterize/describe the behavior development of children with agenesis/dysgenesis of the corpus callosum. Ultimately, this understanding can be used to create more effective intervention techniques and supports for children and adults with ACC.

California Institute of Technology (Caltech). To find out more about the study visitwww.accinfantstudy.com

Governance

Annual AusDoCC Face2Face Planning Meeting and Avo Tea

Major AusDoCC Sponsors

AusDoCC is a 100% Volunteer operated Not For Profit (NFP) organisation. We rely on donations, fundraising and sporadic grants to operate. All Committee members donate their time, expertise and energy. Please donate to help us help all families and individuals connected by a disorder of the corpus callosum. We appreciate  the generosity of all donors and particularly our major sponsors.

Adults with DCC

Click here to meet Georgie, Bill & Connor

15 Adults with a DCC, 3 carers and 2 facilitators spent a valuable 4 days in Brisbane touring QBI and working together with leading corpus callosum researchers and clinicians.
Sponsored by Australian Government Conference Initiatives Grant and AusDoCC Inc.

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Awareness

On July 2,  we wear our Hats, Tatts and Ts for International Corpus Callosum Awareness Day.

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News

SPRING edition due November

Click here to read past AusDoCC newsletters

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 Brain Sells

Edna, our mascot, is a fat tailed dunnart and has no corpus callosum. Buy an Edna here

 Visit the AusDoCC shop https://www.ausdocc.org.au/shop to buy caps, tatts and much much more

NEW in the shop – T shirts. 3 styles. 2 colours. 11 sizes.

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AusDoCC Vision

To ROAR for
R
ecognition, Opportunities, Access and Resources
for everyone with a disorder of the corpus callosum.

 


About AusDoCC and DCC

Brainzzzzz

What is a disorder of the corpus callosum?

The corpus callosum is the major connection between the two hemispheres of the brain. A disorder of the corpus callosum (DCC) occurs when the corpus callosum, the major connecting structure between the two hemispheres of the brain, is partially or fully absent at birth. Disorders are often collectively referred to as ‘agenesis of the corpus callosum’ or ‘ACC.’

more information

Our Stories

When a child is diagnosed with a disorder of the corpus callosum (DCC) parents are often told to ‘wait and see’ as the impacts are many and varied and range from mild to severe. When an adult is diagnosed, it may explain a lifetime of medical puzzles.  All our stories are different. Through sharing our stories, we can see these differences and also the similarities.

read our stories

AusDoCC history

AusDoCC Inc. was created by a group of mothers of children with a disorder of the corpus callosum (DCC) in 2012. It has since expanded to include adults with a DCC, partners and grandparents. Through lived experience we aim to uphold our vision to ROAR for AusDoCC for Recognition, Opportunities, Access and Resources.

about AusDoCC

    As a registered ACNC member, AusDoCC is privileged to display  The Registered Charity Tick, which is reflective of the ACNC’s commitment to being a contemporary, friendly and engaging organisation. The coloured ribbons convey support, pride, spirit and unity.