How is everyone going at school now that we are half way through the year?
If you need some help explaining ACC to your child’s teacher, click here for a helpful resource
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Research
Longitudinal Study of Behavior and Development in Infants and Toddlers with ACC
California Institute of Technology (Caltech)
This is the first study examining behavioral development in children with Agenesis / Dysgenesis of the Corpus Callosum (ACC) from birth into early childhood.
Our aim is to characterize/describe the behavior development of children with agenesis/dysgenesis of the corpus callosum. Ultimately, this understanding can be used to create more effective intervention techniques and supports for children and adults with ACC.
To find out more about the study visit: www.accinfantstudy.com
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Click here to meet 3 adults with ACC
15 Adults with a DCC, 3 carers and 2 facilitators spent a valuable 4 days in Brisbane touring QBI and working together with leading corpus callosum researchers and clinicians.
Sponsored by Australian Government Conference Initiatives Grant and AusDoCC Inc.
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AWARENESS DAY: July 2
On July 2, 2018 we wear our Hats, Tatts and Ts for International Corpus Callosum Awareness Day.
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NEWSLETTERS
WINTER edition due mid June
Click here to read past AusDoCC newsletters
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Support AusDoCC in the AUSDOCC SHOP
Edna, our mascot, is a fat tailed dunnart and has no corpus callosum. Buy an Edna here
Visit the AusDoCC shop https://www.ausdocc.org.au/shop to buy caps, tatts and much much more
NEW in the shop – T shirts. 3 styles. 2 colours. 11 sizes.
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Our Vision
To ROAR for
Recognition, Opportunities, Access and Resources
for everyone with a disorder of the corpus callosum.
Our major sponsors
We thank the generosity of these donors. Their support enables us to provide resources, conferences, information, connections and meetups to all our families scattered across Australia and NZ.
Learn more about AusDoCC and DCC
What is a disorder of the corpus callosum?
The corpus callosum is the major connection between the two hemispheres of the brain. A disorder of the corpus callosum (DCC) occurs when the corpus callosum, the major connecting structure between the two hemispheres of the brain, is partially or fully absent at birth. Disorders are often collectively referred to as ‘agenesis of the corpus callosum’ or ‘ACC.’
Our Stories
When a child is diagnosed with a disorder of the corpus callosum (DCC) parents are often told to ‘wait and see’ as the impacts are many and varied and range from mild to severe. When an adult is diagnosed, it may explain a lifetime of medical puzzles. All our stories are different. Through sharing our stories, we can see these differences and also the similarities.
AusDoCC history
AusDoCC Inc. was created by a group of mothers of children with a disorder of the corpus callosum (DCC) in 2012. It has since expanded to include adults with a DCC, partners and grandparents. Through lived experience we aim to uphold our vision to ROAR for AusDoCC for Recognition, Opportunities, Access and Resources.
